Interview with Reggie Bibbs on his life with neurofibromatosis

Friday, December 14, 2007

Neurofibromatosis (NF) is a genetic condition causing benign tumors (neurofibromas) to grow along certain types of nerves and, in addition, it can affect the development of bones or skin. There are several variants of the disease but type 1 and type 2 NF account for the vast majority of cases.

The disease manifestations can vary from very mild to severe. Major symptoms include growths on and under the skin; skin pigmentations called café au lait spots in type 1; acoustic nerve tumors and consequent hearing loss in type 2. Growths can affect nearly all parts of the body, and pressure on nearby structures can cause a wide variety of complications. There is a small risk that the tumors transform into malignant cancerous lesions.

NF is one of the most common single-gene human diseases; around 1 in 2,500-4,000 live births are affected by NF-1, whereas NF-2 occurs in about 1 in 50,000-120,000. Both type 1 and 2 are autosomal dominant conditions, meaning that only one copy of the mutated gene need be inherited to pass the disorder. A child of a parent with neurofibromatosis and an unaffected parent will have a 50% chance of inheriting the disorder. The gene responsible for NF-1 and possibly NF-2 is thought to function as a tumor suppressor gene.

In most cases of neurofibromatosis 1, patients can live normal and productive lives. In about 25-40% of patients there is an associated learning disability with or without ADHD. In some cases of neurofibromatosis 2, the damage to nearby vital structures, such as the cranial nerves and the brainstem, can be life-threatening. When tumors are causing pain or disfiguration, surgery is thus far the only proven beneficial treatment option.

Reggie Bibbs is a 43-year-old-man living in Houston, Texas. Mr Bibbs was born with a genetic disease called neurofibromatosis (NF), which causes him to develop tumors on his body (see infobox on the right). NF can be a subtle disease, but in Bibbs’ case it has left him with a disfigured face and deformed leg. But he is happy with the way he looks, and doesn’t want to change his appearance to please other people. He has launched a successful campaign entitled “Just Ask”, and that’s just what Wikinews did in a video-interview.

The interview was prepared by Wikinews reporter Michaël Laurent with the help of Bertalan Meskó (who has a popular genetics and web 2.0 blog). Their questions were sent to a close friend of Mr. Bibbs, Lou Congelio, who kindly conducted the interview.

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Egypt protests: Army say they will not use force on demonstrators as Mubarak announces cabinet

Tuesday, February 1, 2011

The president of Egypt has suffered a “devastating blow” after the country’s army announced they would not use force against their own people, who continue to protest against the government tonight. The news came hours after six journalists who reported on the protests were released from custody.

Hosni Mubarak yesterday announced a new cabinet, which does not include several figures who protesters largely do not approve of. Analysts have, however, suggested little had changed within the government; many positions, they say, are filled with military figures.

To the great people of Egypt, your armed forces, acknowledging the legitimate rights of the people … have not and will not use force against the Egyptian people.

In a statement broadcast on state media in Egypt, the army said: “To the great people of Egypt, your armed forces, acknowledging the legitimate rights of the people … have not and will not use force against the Egyptian people.” A BBC correspondent in Cairo said the announcement meant it “now seems increasingly likely that the 30-year rule of Mr Mubarak is drawing to a close.”

“The presence of the army in the streets is for your sake and to ensure your safety and wellbeing. The armed forces will not resort to use of force against our great people,” the statement added. “Your armed forces, who are aware of the legitimacy of your demands and are keen to assume their responsibility in protecting the nation and the citizens, affirms that freedom of expression through peaceful means is guaranteed to everybody.”

Earlier today, six journalists from the independent news network Al-Jazeera were released from custody after being detained by police. The U.S. State Department criticized the arrests; equipment was reportedly confiscated from the journalists.

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Egyptian officials yesterday ordered the satellite channel to stop broadcasting in the country. Al-Jazeera said they were “appalled” by the government’s decision to close its Egyptian offices, which they described as the “latest attack by the Egyptian regime to strike at its freedom to report independently on the unprecedented events in Egypt.”

In a statement, the news agency added: “Al-Jazeera sees this as an act designed to stifle and repress the freedom of reporting by the network and its journalists. In this time of deep turmoil and unrest in Egyptian society it is imperative that voices from all sides be heard; the closing of our bureau by the Egyptian government is aimed at censoring and silencing the voices of the Egyptian people.”

On Friday, Wikinews reported the government had shut off practically all Internet traffic both out of and into the nation, as well as disrupting cellphone usage. A spokesperson for the social networking website Facebook said “limiting Internet access for millions of people is a matter of concern for the global community.”

A reported 50,000 campaigners, who are demanding the long-time leader step down and complaining of poverty, corruption, and oppression, filled Tahrir Square in Cairo today, chanting “We will stay until the coward leaves.” It is thought 100 people have so far died in the demonstrations. Today there have been protests in Suez, Mansoura, Damanhour, and Alexandria.

Speaking to news media in the area, many protesters said the new cabinet did little to quell their anger. “We want a complete change of government, with a civilian authority,” one said. Another added: “This is not a new government. This is the same regime—this is the same bluff. [Mubarak] has been bluffing us for 30 years.”

In Tahrir Square today, protesters played music as strings of barbed wire and army tanks stood nearby. Demonstrators scaled light poles, hanging Egyptian flags and calling for an end to Mubarak’s rule. “One poster featured Mubarak’s face plastered with a Hitler mustache, a sign of the deep resentment toward the 82-year-old leader they blame for widespread poverty, inflation and official indifference and brutality during his 30 years in power,” one journalist in the square reported this evening.

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UK house prices have fallen 10.5% this year, says Nationwide Building Society

Thursday, August 28, 2008

After dropping 1.9% in July, house prices in the United Kingdom are now falling at the fastest rate since 1990, according to Nationwide Building Society.

The average price of a home has dropped by £20,000 down to £164,654, losing 10.5% of its value in 2008. Property values fell by 1.9% in the past month, and 1.5% in July. In another study, it was revealed that house prices have been steadily falling since October last year.

Nationwide’s chief economist, Fionnuala Earley said that activities in the housing market had recently been “very subdued”, although there are signs of increased interests in home sales, possibly due to the appeal of lower house prices.

The Bank of England stated there has been an increase in the number of people taking out a fixed rate mortgage as opposed to a variable rate loan. Further research by Nationwide has concluded that mortgage approvals also fell by 65% last month.

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News briefs:January 18, 2007

The time is 23:00 UTC, on January 18 2007, and this is Audio Wikinews Newsbriefs. (Sound Effect)

[edit]

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Long Term Business Loans Lead Your Business To Apex Of Fame}

Submitted by: Barry Jones

If you are a businessman, you must know what kind of financial strategy is to be executed to get good profit returns in future. It’s very obvious that the basic reason behind starting up of your own business venture is to earn huge money and be the sole owner of profit and loss, whatever is the case.

Whichever be the business it needs efficient supply of funds all the time and especially t the onset. Since, there are many expenses that have to be done in machinery buying, infrastructure, plant construction, electricity, hiring labors and employees into various departments, security, and several more. There is no end to the investment so it would be better that you make a business plan and decide the budget that has to be invested at the time of start up.

Definitely, you cannot afford spending huge amount of capital in cash and that too from your own account. Since, nobody has that much ready cash available. In such situations what come in handy are long term business loans. This is one of the most viable financial aid availed buy the UK finance fraternity to individuals who are embarking on the new business ventures.

Long term business loans are tailor designed specially to provide financial assistance to businesses that are either already running, or at the brink of getting bankrupted or just starting up. even if the loan seekers have bad credit scores they can apply for it as money lenders are now more practical and understand that nobody intentionally wants to be a defaulter or maintain a bad credit history. They are in fact interested in the interest rates offered on the loans availed and the assurance by the customer of repaying the loan amount on time

Usually, two types of loans are offered under head long term business loans including secured and unsecured loans. In case of secured loans the borrower is entitled to pledge any of the material asset or house as collateral against the amount of loan borrowed. As there is collateral so rate of interest on the loan borrowed is less. However, the case of unsecured loans is completely opposite to that of secured loans. With unsecured loans you are not entitled to pledge your property against the money borrowed but you would have to pay higher rate of interest. The high rate of interest is endowed in unsecured loans since moneylender is lending money on his own risk.

Some of the essential requirements that long term business loans seekers have to fulfill include:

ID proof

UK citizenship

Submit business plan and draft

Personal banking account number and debit card details

One of the most important issues that have to be considered before applying for the loan is that you need to take extra care while opting for the type of long term business loan for your business project. Ensure about the loan application terms and not to forget repayment tenure as well. Make sure that you have furnished all the necessary details in the application and submitted the required documents so as to avoid discrepancies at the time of loan processing.

About the Author: Barry Jones is a financial expert dealing with business loans, who provides counseling and expert knowledge on Business loans UK. To know more about long term business loans, small business loans, unsecured business loans and woman business loans visit

businessloansintheuk.co.uk

Source:

isnare.com

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Ontario Votes 2007: Interview with NDP candidate Rick Morelli, Vaughan

Thursday, October 4, 2007

Rick Morelli is running for the NDP in the Ontario provincial election, in the Vaughan riding. Wikinews’ Nick Moreau interviewed him regarding his values, his experience, and his campaign.

Stay tuned for further interviews; every candidate from every party is eligible, and will be contacted. Expect interviews from Liberals, Progressive Conservatives, New Democratic Party members, Ontario Greens, as well as members from the Family Coalition, Freedom, Communist, Libertarian, and Confederation of Regions parties, as well as independents.

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PM reshuffles Cabinet, Pranab Mukherjee is new Indian Foreign minister

Tuesday, October 24, 2006

Pranab Mukherjee was appointed the External Affairs Minister while veteran Congressman A K Antony took his place as Defence Minister in a minor expansion-cum-reshuffle of his 29-month-old government by Prime Minister Manmohan Singh.

Kannada actor-turned-politician M H Ambareesh made his debut in the Union Ministry as Minister of State for Information and Broadcasting.

Jay Prakash Narayan Yadav, an RJD leader and a protege of Railway Minister Lalu Prasad, who had to resign last year following allegations of influencing the police in a case of electoral malpractices against his brother, returned to the government, again as Minister of State for Water Resources.

Oscar Fernandes took over Ministry of Labour.

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SAHTECH, SEMI, and Semiconductor Industry to promote “SEMI Safety Guideline” in Taiwan

Wednesday, April 2, 2008

“Localization of ‘SEMI Safety Guideline'”, executed by Safety and Health Technology Center of Taiwan (SAHTECH) and supervised by Semiconductor Equipment and Materials International (SEMI), was announced today in Hsinchu, Taiwan.

This localization included several fields on health and safety of semiconductor manufacturing, certification testing on electrical devices, evaluations on fire or natural diseases, and environmental issues on semiconductor manufacturing devices, etc.. Companies and manufacturers from the semiconductor industry also paid more attentions on this guideline because issues on carbon-savings, earthquakes, fire diseases, and environment-efficiencies were included into this guideline.

This [safety] guideline was originally promoted by SEMI since 1975 and was set up according to industry infrastructures in Europe, America, Korea, Japan, and Taiwan. Currently, its standards from the S1 to S25 was completely ruled by several world-class executives in semiconductor industry, and the S26 standard for FPD industry, proposed in Taiwan, was also in several arrangements with the other countries.
The semiconductor industry is a high-value industry in every country. If a fabrication plant (fab) was vandalized with fire or earthquake, how will a company decrease its lossless after a disease? As of some examples from the other countries, several companies didn’t pay more attentions on devices’ safety and finally got a damn trouble on counting lossless after a disease. By the way, voltages on electric using will take effect on energy especially the wasting of CO2. We [the semiconductor industry in Taiwan] hope this announcement will drive on global safety standards.
Generally, the designs of a fab will take effect on possibilities when a disease take place in, and its scale will chain much wasting on manufacturing devices and materials. For example, when using fluorine in a fab, a company would consider using a gas tank car rather than a steel bottle. But due to environment and carbon-saving issues, some evaluations should be tested in a fab.

On the other side of the incoming trade show of 2008 SecuTech Expo, scheduled after 2 weeks at Taipei World Trade Center, not only main fields on security devices, information security, and fire & disease preventions, the digital monitoring will be a hot topic in security industry. For applications on fire & disease preventions, because its issues contained industrial applications and ESH (Environmental, Safety & Health) managements, if a company want to decrease the ratio of fire disease or earthquake, companies from safety and related industries should pay more attentions on disease preventions.

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I Have Arthritis In My Ankle What Can I Do?

By Nathan Wei

Ankle arthritis is one of the most common problems seen in a rheumatology office. While it is a relatively small joint complex, it is subjected to a great deal of stress because of the weight-bearing required with standing and walking.

Throw in the need to make forward and backward movements as well as side to side movements, it becomes clear that the stress placed on the bones, ligaments and tendons is tremendous. And that doesnt even account for the twisting and [pivoting motions that are often required during a typical day.

Because of this responsibility and location, ankles are probably injured more than any other joint complex.

Many different kinds of arthritis can affect the ankle. The most common are osteoarthritis. Osteoarthritis is a wear and tear type of arthritis. The cartilage that cushions the joint begins to wear away prematurely as a result of trauma and localized inflammation. This type of osteoarthritis that occurs following injury is referred to as post-traumatic osteoarthritis. A common scenario is someone who sprains their ankle as an adolescent or young adult and then develops ankle arthritis years later.

Rheumatoid arthritis comprises about 15 per cent of ankle arthritis. Rheumatoid arthritis is a chronic systemic autoimmune disease that affects virtually all joints. The chronic inflammation leads to progressive deterioration of cartilage, bone, and ligaments.

[youtube]http://www.youtube.com/watch?v=nKtNi1YGGO8[/youtube]

Other types of arthritis that can attack the ankle include psoriatic arthritis, Reiters disease, gout, pseudogout, sarcoidosis, juvenile arthritis, and ankylosing spondylitis.

Treatment of ankle arthritis first consists of making the correct diagnosis. That takes a careful history and physical examination. Laboratory testing and imaging studies such as x-ray, ultrasound, and magnetic resonance imaging are useful.

Treatment for mild discomfort is straightforward. Limit activities that cause pain. That means high impact sports like running, soccer, and basketball. If excess weight is an issue, then weight loss is mandatory. Over-the-counter anti-inflammatory medicines can also provide symptomatic relief.

Various ankle braces can be a lifesaver. These come in different varieties and shapes. They can fasten using laces or Velcro. Braces may be soft or may contain a hard synthetic shell. It is best to consult with your rheumatologist or orthopedist before purchasing a brace.

Orthotics are shoe inserts that tilt the ankle and relieve pain by altering the direction of stress forces. These should be custom-made for optimal results.

Rocker bottom shoes reduce pain with walking because they limit the amount of motion the joint has to go through. People who have had ankle fusion surgery 9where the joijt is fused together) often find rocker bottom shoes helpful.

When ankle pain is severe due to inflammation and/or fluid accumulation, then aspirating the joint with a needle and injecting a long-acting glucocorticoid (steroid) may be very useful. Following a procedure like this, it is a good idea for the patient to have their ankle braced for at least three days to rest the joint.

Physical therapy is also an excellent adjunctive therapeutic approach. The therapist can help the patient with different modalities that can reduce edema (soft tissue swelling0 as well as inflammation and also teach a patient exercises to strengthen and stabilize the ankle so that future ankle sprains and strains are less likely.

Patients who have severe ankle arthritis due to osteoarthritis may benefit from viscosupplementation. This is a procedure where a lubricant is injected into the joint. Viscosupplements have been used successfully in many joints including the knee, hip, and shoulder, as well as the ankle.

Surgery is an option for patients who have failed more conservative measures. Arthroscopy, which is a procedure where a small telescope is inserted into the ankle joint through a tiny incision. Small instruments are used to remove loose pieces of cartilage. This procedure can also be incorporated with simultaneous cartilage transplant where healthy cartilage is inserted in place of damaged cartilage at the time of the procedure. Cartilage transplant procedures are very time intensive and require limited weight bearing for several weeks to months afterward.

Joint realignment is a procedure where a wedge of bone is removed from one side of the ankle so that stress forces are transferred to the healthy part of the ankle. While this is a temporary fix, it is useful for some patients.

Ankle fusion is a surgical procedure where the tibia (leg bone) is screwed to the talus (upper ankle bone). This restores alignment and reduces pain. Unfortunately, the patient loses about half of the plantar and dorsiflexion (toe down and toe up) movement in the ankle. The ability to walk without pain is restored to the ankle; however, there is more stress placed on other weight-bearing joints such as the knee, which can lead to the development of osteoarthritis in these joints.

Ankle replacement is an increasingly popular option. In the past, ankle replacements werent that effective but technological advances have improved their success. Good candidates for ankle replacement are those who are older than 55 years of age, in good medial condition, have their weight in the normal range, and who dont engage in high impact activities either at work or during their leisure time.

About the Author: Nathan Wei, MD FACP FACR is a rheumatologist and Director of the Arthritis and Osteoporosis Center of Maryland. He is a Clinical Assistant Professor of Medicine at the University of Maryland School of Medicine. For more info:

Arthritis Treatment

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US Nazi leader talks about Barack Obama, the economy and more

Saturday, November 22, 2008

The National Socialist Movement is, according to its website, the largest and most active Nazi party in the United States. Accordingly, it refers to itself as ‘America’s Nazi Party’ and aims to instigate major change in the US.

Wikinews was able to conduct an interview with the head of the party, Commander Jeff Schoep. Fresh back from a march in Missouri, Commander Schoep told Wikinews his views on Barack Obama, the economy and much more.

Read the full exclusive interview below:

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